{"id":3211,"date":"2026-04-21T15:04:33","date_gmt":"2026-04-21T15:04:33","guid":{"rendered":"https:\/\/usheritalia.it\/testimonianza-nibbio\/"},"modified":"2026-04-22T13:03:43","modified_gmt":"2026-04-22T13:03:43","slug":"testimonianza-nibbio","status":"publish","type":"page","link":"https:\/\/usheritalia.it\/es\/testimonianza-nibbio\/","title":{"rendered":"Testimonianza Nibbio"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"3211\" class=\"elementor elementor-3211 elementor-3105\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-89cc62d e-con-full e-flex e-con e-parent\" data-id=\"89cc62d\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c18bdc3 animated-slow elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"c18bdc3\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;slideInUp&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Testimonio de Orlando Nibbio<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0ab5ea8 animated-slow elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"0ab5ea8\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;slideInUp&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Vivir con el S\u00edndrome de Usher<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5bf8212 e-con-full e-flex e-con e-child\" data-id=\"5bf8212\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-7b99205 animated-slow e-con-full e-flex elementor-invisible e-con e-child\" data-id=\"7b99205\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:600,&quot;background_motion_fx_motion_fx_scrolling&quot;:&quot;yes&quot;,&quot;background_motion_fx_translateX_effect&quot;:&quot;yes&quot;,&quot;background_motion_fx_translateX_direction&quot;:&quot;negative&quot;,&quot;background_motion_fx_translateX_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:2.5,&quot;sizes&quot;:[]},&quot;background_motion_fx_translateX_affectedRange&quot;:{&quot;unit&quot;:&quot;%&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:{&quot;start&quot;:0,&quot;end&quot;:100}},&quot;background_motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;laptop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\">\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6645128 e-con-full e-flex e-con e-child\" data-id=\"6645128\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a413557 elementor-blockquote--skin-quotation elementor-blockquote--align-center elementor-widget elementor-widget-blockquote\" data-id=\"a413557\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"blockquote.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<blockquote class=\"elementor-blockquote\">\n\t\t\t<p class=\"elementor-blockquote__content\">\n\t\t\t\tMi experiencia, entre el miedo y la comprensi\u00f3n\t\t\t<\/p>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-165959a elementor-widget elementor-widget-text-editor\" data-id=\"165959a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Escribir estas palabras no es f\u00e1cil, pero es necesario. Si mi experiencia puede ayudar aunque sea a una sola persona a sentirse menos sola, habr\u00e1 valido la pena.<\/p><p>Los primeros s\u00edntomas, ahora que lo pienso, ya estaban presentes cuando era ni\u00f1a. Alrededor de los 12 a\u00f1os, empec\u00e9 a notar claramente las dificultades que ten\u00eda en la oscuridad. Pero en el fondo, sab\u00eda que algo andaba mal incluso antes. Recuerdo jugar al escondite o a la pilla por la noche: siempre acababa chocando con las mismas cosas, incluso con una farola&#8230; y con el mismo ni\u00f1o.<\/p><p>En aquel momento, parec\u00eda simple torpeza, pero no lo era.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-33f277b e-con-full e-flex e-con e-parent\" data-id=\"33f277b\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8c9027e elementor-widget elementor-widget-text-editor\" data-id=\"8c9027e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Mi vida ya estaba marcada por una realidad compleja: mi hermano mayor, un a\u00f1o mayor que yo, ten\u00eda S\u00edndrome de Down.<\/p><p>Vi con mis propios ojos c\u00f3mo lo trataban: lo juzgaban, se burlaban de \u00e9l, a menudo lo exclu\u00edan. Esto me afect\u00f3 profundamente. Un miedo silencioso creci\u00f3 en mi interior: \u00ab\u00bfMe pasar\u00e1 a m\u00ed tambi\u00e9n?\u00bb. Esta pregunta me atorment\u00f3 durante mucho tiempo, incluso antes de recibir un diagn\u00f3stico. El primer diagn\u00f3stico que recib\u00ed fue retinosis pigmentaria.<\/p><p>Todav\u00eda recuerdo las palabras del oftalm\u00f3logo: directas, fr\u00edas, sin darme ninguna esperanza. Me dijo que me quedar\u00eda ciego. Ten\u00eda toda la vida por delante, y en ese momento sent\u00ed que me la arrebataban. Hoy tengo 54 a\u00f1os y a\u00fan puedo ver, aunque con dificultad. Pero entonces, siendo ni\u00f1o, esas palabras me destrozaron. Ten\u00eda much\u00edsimas preguntas, demasiadas para un joven: <br \/>\u00ab\u00bfMe casar\u00e9?\u00bb <br \/>\u00ab\u00bfFormar\u00e9 una familia?\u00bb <br \/>\u00ab\u00bfQu\u00e9 trabajo podr\u00e9 hacer?\u00bb<\/p><p><br \/>Y lo m\u00e1s dif\u00edcil era que no encontraba respuestas. No ten\u00eda con qui\u00e9n hablar de verdad, nadie que pudiera comprender del todo por lo que estaba pasando. Durante la secundaria, tambi\u00e9n not\u00e9 mis dificultades auditivas. Al principio eran sutiles, luego se hicieron cada vez m\u00e1s evidentes. Intent\u00e9 leer los labios, pero nunca lo logr\u00e9 del todo. Lleg\u00f3 un punto en que me di por vencido.<\/p><p>El S\u00ecndrome de Usher cambia la vida, es cierto. Pero no la borra. Puedes seguir viviendo, construyendo, encontrando sentido y relaciones. Y, sobre todo, puedes aprender a no enfrentar todo esto solo.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e03e9d9 elementor-widget elementor-widget-heading\" data-id=\"e03e9d9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Abril de 2026<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0d9fb61 e-flex e-con-boxed e-con e-parent\" data-id=\"0d9fb61\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-30d46d8 elementor-mobile-align-left elementor-widget elementor-widget-button\" data-id=\"30d46d8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/usheritalia.it\/es\/testimonianze\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-angle-double-left\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M223.7 239l136-136c9.4-9.4 24.6-9.4 33.9 0l22.6 22.6c9.4 9.4 9.4 24.6 0 33.9L319.9 256l96.4 96.4c9.4 9.4 9.4 24.6 0 33.9L393.7 409c-9.4 9.4-24.6 9.4-33.9 0l-136-136c-9.5-9.4-9.5-24.6-.1-34zm-192 34l136 136c9.4 9.4 24.6 9.4 33.9 0l22.6-22.6c9.4-9.4 9.4-24.6 0-33.9L127.9 256l96.4-96.4c9.4-9.4 9.4-24.6 0-33.9L201.7 103c-9.4-9.4-24.6-9.4-33.9 0l-136 136c-9.5 9.4-9.5 24.6-.1 34z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Vuelve a los VOCES DE USHER<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Testimonio de Orlando Nibbio Vivir con el S\u00edndrome de Usher Mi experiencia, entre el miedo y la comprensi\u00f3n Escribir estas palabras no es f\u00e1cil, pero es necesario. Si mi experiencia [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-3211","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Testimonianza Nibbio - USHER Italia A.P.S.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/usheritalia.it\/es\/testimonianza-nibbio\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Testimonianza Nibbio - USHER Italia A.P.S.\" \/>\n<meta property=\"og:description\" content=\"Testimonio de Orlando Nibbio Vivir con el S\u00edndrome de Usher Mi experiencia, entre el miedo y la comprensi\u00f3n Escribir estas palabras no es f\u00e1cil, pero es necesario. 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