{"id":2406,"date":"2025-11-11T16:50:18","date_gmt":"2025-11-11T16:50:18","guid":{"rendered":"https:\/\/usheritalia.it\/interviste\/"},"modified":"2026-04-22T13:23:47","modified_gmt":"2026-04-22T13:23:47","slug":"interviste","status":"publish","type":"page","link":"https:\/\/usheritalia.it\/es\/interviste\/","title":{"rendered":"Interviste"},"content":{"rendered":"\t\t
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Mundo Usher<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Entrevistas<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tDominique Sturz\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\tPatient Advocate Usher syndrome and Rare Diseases\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Septiembre de 2025<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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L:<\/strong> Gracias Dominique por este encuentro. Como Presidenta de USHER Italia A.P.S., quer\u00eda conocerte al saber que llevas tiempo implicada en el campo del S\u00edndrome de Usher. \u00bfCu\u00e1ndo comenz\u00f3 tu compromiso?<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tMirella Zanobini\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Noviembre 2025<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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U: <\/b>Gracias, Mirella, por esta entrevista.
Nos gustar\u00eda hacerte algunas preguntas destinadas a ayudar a quienes leen a comprender cu\u00e1les pueden ser las situaciones, pensamientos y sentimientos del padre o la madre de una persona con el S\u00edndrome de Usher. En tu testimonio hablas de los \u201cobst\u00e1culos\u201d que tu hijo A. ha encontrado.
\u00bfCu\u00e1les fueron esos obst\u00e1culos?<\/b><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tDr Giacomo Calzetti\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\tInvestigatore Principale dello studio Uni-Rare, Clinica Vista Vision, Brescia (IT)\n\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Noviembre 2025<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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U:<\/strong> Gracias, Dr. Calzetti, por su disponibilidad para esta entrevista. Sabemos que usted est\u00e1 trabajando en un estudio<\/strong> que tambi\u00e9n concierne a las personas con el S\u00edndrome de Usher<\/strong>.
\u00bfDe qu\u00e9 estudio se trata?<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t<\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\tLee la entrevista<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Mundo Usher Entrevistas Dominique Sturz Patient Advocate Usher syndrome and Rare Diseases Septiembre de 2025 L: Gracias Dominique por este encuentro. Como Presidenta de USHER Italia A.P.S., quer\u00eda conocerte al […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2406","page","type-page","status-publish","hentry"],"yoast_head":"\nInterviste - USHER Italia A.P.S.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/usheritalia.it\/es\/interviste\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Interviste - USHER Italia A.P.S.\" \/>\n<meta property=\"og:description\" content=\"Mundo Usher Entrevistas Dominique Sturz Patient Advocate Usher syndrome and Rare Diseases Septiembre de 2025 L: Gracias Dominique por este encuentro. 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